2024 Conference Schedule

9:00 - 9:30 AM - Check In for Watch Parties

9:30 AM Opening Remarks

Jeannine Garab, Board Chair, Epilepsy Coalition of New York State, Inc. and Executive Director, Epilepsy Foundation of Northeastern New York

9:35 AM Epilepsy & Genetics

Allayna Frank, MSGC, Neurogenetic Counselor at Upstate University Hospital, Syracuse, NY

 10:15 AM Self-Management Panel

Alison Kukla, MPH, Senior Manager, Programs and Partnerships, Epilepsy Foundation
Matthew Windrum, Epilepsy Advocate
Jamie Mulliger, Epilepsy Advocate

10:45 AM Keynote Speaker

Gianna Spirio, Epilepsy Advocate

11:15 AM Break

11:30 AM Current Treatment Options

Elizabeth Ng, MD, FAAP, Pediatric Epileptologist and Neuromuscular Neurologist, Connecticut Children's
Rebecca Spiegel, MD, MA, FAES, Associate Professor of Clinical Neurology and Chief of EGG/Epilepsy, Stony Brook University/Renaissance School of Medicine

12:15 PM Legislative Advocacy

Colleen Quinn, mom of son with epilepsy and experienced epilepsy advocate

12:45 PM Closing Remarks

Jeannine Garab, Board Chair, Epilepsy Coalition of New York State, Inc. and Executive Director, Epilepsy Foundation of Northeastern New York